Alexis Update: A Blessing in Disguise…

Hey Everyone,

On Friday February 5, 2010 Alexis had her port replacement surgery. Before I tell you about it, I would like to thank you for praying. God heard those prayers and gave the surgeons wisdom and knowledge in order to see that something was wrong and turn this surgery into a “blessing in disguise” as Ashley called it!

Alexis playing in the snow!

Alexis had to be at Childrens Hospital in Pittsburgh, PA for surgery at 5:45 AM. This meant that they had to leave Altoona, PA at about 3:00 AM.

On Wednesday, Ashley got a call from Alexis’ hem/onc doctor and she told her that Alexis would need a plasma infusion when they arrived because the clotting agents in her blood were abnormal, due to the PEG-aspariginase (type of chemo) that she has been given. Ashley said that the doctors said it was totally normal and something that they expected to happen; that’s why they looked for it. She said it was nothing really bad and if it were an emergency, they would have no worries about just doing the surgery. But since it was scheduled, they decided to go ahead and do the infusion to be on the safe side.

There was a bit of confusion whenever they got to the same day surgery unit. No one had any record of Alexis needing the infusion. They made some phone calls and found out that Ashley was correct, and that Alexis was supposed to have the infusion. The doctors opted to give her the infusion during the surgery, which made Ashley a little bit nervous. But she trusted the doctors and let them do their thing.

The surgery went extremely well. They placed the new mediport on the same side as the old port, only lower and more towards the front. Ashley says “It looks AWESOME!!!!!” The new port is less noticeable than the old powerport. When the surgeon came out to talk to Ashley after the surgery, he told them that he tried to place it on the opposite side but couldn’t get the catheter into the blood vessel, so he placed it on the same side as the old one. When he removed the old port, he told the family that the catheter had flipped and was going in the opposite direction. This is where the “blessing in disguise” comes into play. God saw that she needed this done and that it could give her problems in the future, so He gave the doctors what they needed in order to correct the problem before it became a serious problem. Ashley said “SO thank God that she had it replaced before it gave her problems!”

Alexis slept the whole way home from the hospital and was doing awesome by the time Friday night rolled around.

We got slammed with a huge snow storm on Friday and Saturday. God allowed them to get home though before the roads got bad. We got around 23 inches of snow (or somewhere around there). So thank you to those of you who were also praying for safe travels to and from the hospital!

Lastly, Ashley says “Thanks for your prayers and support!!!”

You guys are awesome and I know that God hears our prayers for this little girl and her family and is answering them left and right! Wooo Hooo! Thank you!!!

–          paulg

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