It’s been a while since I have updated you on Alexis’ battle with Acute Lymphoblastic Leukemia. There have been some positives and some negatives since my last update, as is normal for what she is going through. I will start with the positives and then finish with the negative, which will also let you know how you can be praying!
On Sunday January 24, 2010, Ashley got a call during church and had to rush out to take Alexis to the hospital here in Altoona. Her port (the place under her arm pit where they administer the chemo) was extremely red and swollen. They were afraid it was infected. The doctors concluded that it was just irritated from the skin being stretched so tightly over it and her clothes rubbing on it. So that was a relief to hear!
On Tuesday January 27, 2010, Ashley received some very good news about Alexis’ blood counts. Her white blood cells were up (not as much, but still good). Her Hemoglobin’s and Platelets are down (but this is normal for the chemo she has been receiving). But the most amazing news is what I’m about to tell you next! Alexis’ ANC (Absolute Neutrophil Count) was raised significantly from the last report and from what it should be in someone in her condition. Normal ANC should be between 1,000 and 2,000. Alexis’ numbers have been in the 300-400 range as of late, but something happened last week that can only be explained by looking to God, the Mighty Physician and Awesome Provider! Last week, Alexi’s dad was diagnosed with Pneumonia. Alexis was with her dad a few days before this happened, so everyone was afraid that she would get sick due to her ANC being as low as it has been. But God had other plans. When Ashley and her mom (Diana) were told that Alexis’ ANC was way up, Diana said (out loud, in the hospital room) “God knew what she needed to keep from getting the pneumonia her daddy has!” On Friday January 22, 2010, her ANC was 640, and on Tuesday January 26, 2010, her count was 1,800!!!! With the intense chemo she was receiving, the counts should have dropped significantly, not gone up significantly!
Another praise is that due to the intense chemo Alexis has been receiving over the last two weeks, she should have lost her hair by now…and she hasn’t! She still has a full head of hair and is still full of energy, which is something that the doctors said she would lose as well!
Alexis has not been sleeping very well lately and Ashley and her parents are not sure why. Sometimes it seems as if she has a belly ache and sometimes it may be a bad dream. They say she has been crying for a ½ hour plus, several times per night. This not only affects Ashley (who sleeps with Alexis), but it also affects Ashley’s parents. They all wake up to care for Alexis and then have trouble falling back to sleep, and when they finally do, Alexis wakes up crying again.
Alexis is currently (as I write this at 10:15 am on Tuesday February 2, 2010) at Childrens Hospital in Pittsburgh, PA receiving a chemo treatment and LP (spinal tap). Here platelets and other levels are good, so she will not need a transfusion today (which is an answer to prayer). As of Monday, her ANC was below 500 though (in the 400 range). Today, Ashley has informed me that it is down to 200. Due to this low number, she is highly susceptible to infection and sicknesses.
I received a text message from Ashley a little bit ago that said that Alexis will need to have surgery on Friday to have her port replaced because it is rubbing through her skin. They won’t find out what time the surgery is until Thursday night sometime. Ashley says that they could possibly not find out until 9 pm Thursday and then have to be there at 6 am on Friday.
So where do you come in? I need you all to pray for several things. Pray for them once, pray for them twice, pray for them a million times. Ashley, Alexis, and family need your prayers so very much right now!
Please pray for:
- Alexis’ numbers to stay in the normal range
- Alexis to not get sick due to her low ANC
- Alexis’ hair to stay for as long as possible (I’ve been praying that she won’t lose it…because nothing is impossible with God)
- Alexis’ Port Replacement Surgery on Friday February 5, 2010
- Health for Ashley and her family…they need to stay healthy to make sure Alexis gets healthy
- Rest for Ashley, Alexis, and Ashley’s Parents
- Peace for everyone involved
Thank you all so very much for your continued prayers, love, and support of little Alexis and everyone involved in what she is going through.
God is in control, and He hears our prayers. So keep ‘em coming!!! Thank you!!!